Fermanagh and Omagh District Council Accessibility Information Event

Fermanagh and Omagh District Council are hosting an accessibility information event at the Bawnacre Centre in Irvinestown on Tuesday 28th March from 4.30pm to 7.30pm. Obtain information to organisations and services available within the Fermanagh and Omagh area specifically for children and/or adults with disabilities Provide feedback to the Council’s Disability Advisory Group in relation […]

The Sky's The Limit in Omagh With SkyzDaLimit!

SkyzDaLimit in Omagh is a a theatre company for people with a learning disability. It is Ireland’s foremost disability musical theatre company. Check out the video below to see the Blues Family Horror show they put on in Strule Art Centre Omagh back in June 2014. An extremely talented group of people, with lots of plays […]

Grace Gets Approval From HSE For Vimizim

Delighted to hear the news this afternoon that Grace has been given the go ahead to get Vimizim from the HSE in the south of Ireland. This is fantastic news for Grace. Vimizim though has not been approved fully for others in the south with Morquio, but I will continue to support The Irish MPS […]

Get Grace on RTE's The Late Late Show

Grace is a young girl from Carrickmacross in Co. Monaghan. She has an rare condition called Morquio Disease. This condition causes lots of different medical problems including growth issues. Grace is nearly 9 years old, but is the height of a toddler. She suffers with heart, respiratory, hearing and vision difficulties. She has to use a […]

Dermot to Speak at Rare Disease Day in Dublin

I am proud to be one of the guest speakers at International Rare Disease Day in Dublin this year. I will be speaking a little about my disability Morquio and the fight to get Vimizim approved in the UK and my experiences of getting the treatment over the last 12 weeks. I’ll also be talking […]

Taxi Driver Turns Away Customers With Disabilities

Yesterday evening, whilst checking my Facebook, I saw a post from my friend Frank Larkin from Letterkenny, Co. Donegal. He was talking about this anger about being denied a taxi for him and his wife Pauline on Thursday evening. What makes me quite angry is, that the taxi driver drove off without giving any indication […]

UK Austerity Policies 'Amount To Violations Of Disabled People's Rights'

UN says measures aimed at reducing public spending since 2010 have affected disabled people disproportionately. Austerity policies introduced into welfare and social care by the UK government amount to “systematic violations” of the rights of people with disabilities, a UN inquiry has concluded. It says a range of measures aimed at reducing public spending since 2010, […]