Shopmobility Omagh Day on 21st June 2017

Shopmobility Omagh are hosting a Shopmobility Day on 21st June 2017 and are celebrating it by holding  a “Ramble by the River”.  Members and carers from the remaining  12 Shopmobility schemes are coming to Omagh to celebrate with us and we were wondering if any of the Access Forum would like to attend  (approx time 10am – 6pm) […]

Fermanagh and Omagh District Council Accessibility Information Event

Fermanagh and Omagh District Council are hosting an accessibility information event at the Bawnacre Centre in Irvinestown on Tuesday 28th March from 4.30pm to 7.30pm. Obtain information to organisations and services available within the Fermanagh and Omagh area specifically for children and/or adults with disabilities Provide feedback to the Council’s Disability Advisory Group in relation […]

The Sky's The Limit in Omagh With SkyzDaLimit!

SkyzDaLimit in Omagh is a a theatre company for people with a learning disability. It is Ireland’s foremost disability musical theatre company. Check out the video below to see the Blues Family Horror show they put on in Strule Art Centre Omagh back in June 2014. An extremely talented group of people, with lots of plays […]

Grace Gets Approval From HSE For Vimizim

Delighted to hear the news this afternoon that Grace has been given the go ahead to get Vimizim from the HSE in the south of Ireland. This is fantastic news for Grace. Vimizim though has not been approved fully for others in the south with Morquio, but I will continue to support The Irish MPS […]

Get Grace on RTE's The Late Late Show

Grace is a young girl from Carrickmacross in Co. Monaghan. She has an rare condition called Morquio Disease. This condition causes lots of different medical problems including growth issues. Grace is nearly 9 years old, but is the height of a toddler. She suffers with heart, respiratory, hearing and vision difficulties. She has to use a […]

Dermot to Speak at Rare Disease Day in Dublin

I am proud to be one of the guest speakers at International Rare Disease Day in Dublin this year. I will be speaking a little about my disability Morquio and the fight to get Vimizim approved in the UK and my experiences of getting the treatment over the last 12 weeks. I’ll also be talking […]