Delighted to hear the news this afternoon that Grace has been given the go ahead to get Vimizim from the HSE in the south of Ireland. This is fantastic news for Grace.
Vimizim though has not been approved fully for others in the south with Morquio, but I will continue to support The Irish MPS Society in their campaign.
Today though, is a great day for Grace and one for celebration. Congratulations Grace and Grainne.